{"id":31201,"date":"2023-12-12T11:27:29","date_gmt":"2023-12-12T10:27:29","guid":{"rendered":"https:\/\/carpem.stage.spacerdesign.com\/program-3\/"},"modified":"2024-01-22T11:10:48","modified_gmt":"2024-01-22T10:10:48","slug":"program-3","status":"publish","type":"page","link":"https:\/\/carpem.stage.spacerdesign.com\/en\/integrated-research-programs-irp\/program-3\/","title":{"rendered":"Program 3"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_column_text]<\/p>\n<h2 style=\"text-align: center;\">IMPLEMENTING A PATIENT AND RELATIVES ENGAGEMENT PROGRAM TO PROMOTE PATIENT EMPOWERMENT IN TRANSLATIONAL RESEARCH<\/h2>\n<p>[\/vc_column_text]<div class=\"clearboth\"><\/div><style>#thegem-divider-69ef17a02af9a {margin-top: 50px !important;}<\/style><div id=\"thegem-divider-69ef17a02af9a\" class=\"gem-divider  divider-hidden\" style=\"\" ><\/div>[\/vc_column][\/vc_row][vc_row equal_height=&#8221;yes&#8221;][vc_column width=&#8221;1\/2&#8243;][vc_column_text]<\/p>\n<h5 style=\"text-align: center;\">COORDONATORS<\/h5>\n<p>[\/vc_column_text]<div class=\"gem-team row inline-row gem-team-style-3\" > <div class=\"col-sm-6 col-xs-12 inline-column\"> <div id=\"post-31294\" class=\"team-person centered-box bordered-box post-31294 thegem_team_person type-thegem_team_person status-publish has-post-thumbnail\" style=\" \"> <div class=\"team-person-image\"> <picture> <source srcset=\"https:\/\/carpem.stage.spacerdesign.com\/wp-content\/uploads\/2023\/10\/female-silhouette-768x614-1-thegem-person-240.jpg 1x\" sizes=\"100vw\"> <img src=\"https:\/\/carpem.stage.spacerdesign.com\/wp-content\/uploads\/2023\/10\/female-silhouette-768x614-1-thegem-person-240.jpg\" width=\"240\" height=\"240\" class=\"img-responsive\" alt=\"female-silhouette-768x614\" \/> <\/picture> <\/div> <div class=\"team-person-info\"> <div class=\"team-person-name styled-subtitle\" >Marie-France Mamzer, MD, PhD<\/div> <\/div> <div class=\"team-person-email date-color\"><a class=\"date-color\" href=\"mailto:marie-france.mamzer@u-paris.fr\"><\/a><\/div> <\/div> <\/div> <div class=\"col-sm-6 col-xs-12 inline-column\"> <div id=\"post-31295\" class=\"team-person centered-box bordered-box post-31295 thegem_team_person type-thegem_team_person status-publish has-post-thumbnail\" style=\" \"> <div class=\"team-person-image\"> <picture> <source srcset=\"https:\/\/carpem.stage.spacerdesign.com\/wp-content\/uploads\/2023\/10\/female-silhouette-768x614-1-thegem-person-240.jpg 1x\" sizes=\"100vw\"> <img src=\"https:\/\/carpem.stage.spacerdesign.com\/wp-content\/uploads\/2023\/10\/female-silhouette-768x614-1-thegem-person-240.jpg\" width=\"240\" height=\"240\" class=\"img-responsive\" alt=\"female-silhouette-768x614\" \/> <\/picture> <\/div> <div class=\"team-person-info\"> <div class=\"team-person-name styled-subtitle\" >Mathilde Touvier, PhD<\/div> <\/div> <div class=\"team-person-email date-color\"><a class=\"date-color\" href=\"mailto:m.touvier@eren.smbh.univ-paris13.fr\"><\/a><\/div> <\/div> <\/div> <\/div>[\/vc_column][vc_column width=&#8221;1\/2&#8243; css_animation=&#8221;fadeIn&#8221; css=&#8221;.vc_custom_1550402874611{padding-top: 0px !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221;]<div class=\"clearboth\"><\/div><style>#thegem-divider-69ef17a02c3ed {margin-top: 100px !important;}<\/style><div id=\"thegem-divider-69ef17a02c3ed\" class=\"gem-divider  divider-hidden\" style=\"\" ><\/div>[vc_single_image image=&#8221;29361&#8243; img_size=&#8221;full&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text css=&#8221;.vc_custom_1697455201846{margin-top: -10px !important;padding-top: 20px !important;}&#8221;]This program aims to strengthen the involvement of patients and their families in the translational research conducted by SIRIC CARPEM. The partnership between patients, family caregivers, doctors and researchers will be encouraged by the creation of a working group bringing them together. This group will have a consultative role (ethical issues, health democracy, etc.) and an operational role (facilitating patient adherence to C-MOT) on research projects. A participatory research program will be developed around tools for measuring the experience and results reported by patients (PREM\/PROM) in nutrition, on their care pathway and on their participation in research projects.[\/vc_column_text][vc_tta_accordion style=&#8221;simple_solid&#8221; shape=&#8221;square&#8221; c_icon=&#8221;solid_squared&#8221; active_section=&#8221;6354&#8243; no_fill=&#8221;true&#8221; collapsible_all=&#8221;true&#8221;][vc_tta_section title=&#8221;Why this theme?&#8221; tab_id=&#8221;1544797315319-dab5f41c-c8d9&#8243;][vc_column_text css=&#8221;.vc_custom_1696414188309{margin-bottom: 0px !important;}&#8221;]In the field of translational medicine, new practices, although innovative and promising, can be rejected by patients and the general public if they are not properly understood. Partnership between patients and healthcare professionals is therefore essential to improve understanding of translational medicine practices and develop a common language, an effective means of disseminating new knowledge to the general public.<\/p>\n<p>The CARPEM 3 program offers a unique opportunity to further our collective goal of developing health democracy and the involvement of patients, their families and the general public in translational cancer research, by providing the material conditions for implementing this essential partnership.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Main objectives and Workpackages&#8221; tab_id=&#8221;1544797315320-c1d58d77-e01f&#8221;][vc_column_text css=&#8221;.vc_custom_1696414219676{margin-bottom: 0px !important;}&#8221;]This research program is divided into 2 workpackages.<\/p>\n<p>WP8 \u201cImplementation and structuring of the CARPEM3 Co-T-REx group as an advisory committee and facilitating executive group\u201d. This workpackage aims to set up a joint group that will function not only as an advisory committee for the CARPEM3 research program, but will also have executive missions. It will be involved in promoting patient participation in the C-MOT described in IRP2. In addition, this group will be the executive coordinator of a patient-centered collaborative research program, and will pursue an ambitious agenda of knowledge dissemination through communication actions.<\/p>\n<p>WP9 \u201cMeasuring patient experiences and outcomes in translational cancer research and care pathways\u201d. This workpackage aims to promote the routine use of PROMs in cancer clinical settings, as well as to co-construct with patients and validate new PROM or PREM tools. The systematic use of these patient-reported measurement tools empowers patients and their relatives, improves monitoring of patients\u2019 symptoms, and enables healthcare professionals to understand patients\u2019 needs.[\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text] IMPLEMENTING A PATIENT AND RELATIVES ENGAGEMENT PROGRAM TO PROMOTE PATIENT&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":31204,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-31201","page","type-page","status-publish"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Program 3 - Carpem<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carpem.stage.spacerdesign.com\/les-irp\/programme-3\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Program 3 - 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